September 3, 2006

This Changes Everything

Filed under: Bitching & Moaning — cherie @ 12:41 pm

My son is six years old, smart as a whip, more stubborn than ten mules, and endearingly, wonderfully different from most children.

Last week we found out why.

After having even more trouble at the start of school this year (last year we thougt it was something he’d just grow out of; a side-effect of never having been in daycare or even babysat by anybody apart from close family)  we arranged for an in-depth evaluation for him, and the results are in.  He has Asperger’s syndrome, which is a mild form of autism.  Prior to August 22nd - the very day of my grandmother’s funeral in fact - we had never even heard of Asperger’s.  It seems like months have passed since then; my days have been so full of conferences at school and appointments with various doctors, counsellors, and specialists.

The people I’ve told so far are quick to point out (trying to comfort me I think, which I *do* appreciate) that Asperger’s is not necessarily crippling.  That in fact many very successful people (like Albert Einstein, for instance, although the condition had not been identified when he was a kid) were also “aspies”.  I know this is true, and I know my son is very smart and has every chance of growing into a contented, productive adult, but just at the moment it’s a little overwhelming for the mom & dad whose job it is to get him there.

Asperger’s, like classic autism, is a condition in which the brain is wired differently from the norm.  This difference in brain wiring makes it very easy for my boy to learn some things (like how to read and how to use a computer), and very difficult for him to learn others.  The biggest difficulty is that aspies don’t just “pick up” all the non-verbal clues which are so important in human communication, the kind of things that neurotypical people learn without ever having to be taught.  He will need special lessons to learn about things like making eye contact and taking turns in conversation or how to tell what someone is feeling by their facial expression or the tone of their voice.  And we will need to learn all this stuff consciously as well (this stuff is completely unconscious for most people), so we can figure out how to teach it to him.

Another difficulty is that aspies tend to fixate on things:  objects, people, places, and even whole areas of study.  This can be a good thing; it’s the trait that allows adult aspies to delve deeply into a subject and make great contributions to the body of human knowledge.  But when you’re six years old and don’t have the skills to communicate what’s going on, getting so upset that you run away because you weren’t allowed to put your lunch garbage in the “right” garbage bin can be very problematic.  We used to dismiss these fixations (after all, who gets THAT upset about using one garbage can rather than another in a row of identical cans?), which led to a lot of unhappiness and struggle for everybody.  Now at least we understand…but we also understand that he could go into an emotional meltdown anytime, anywhere, over things so minor to us that they are tough to identify.  We get to look forward to always being the parents of the screaming child throwing a fit in line at the grocery store, with clueless onlookers giving advice about discipline (often along the lines of “if that was my kid I’d smack him!”).  Advice that’s not only unasked-for, but also downright counterproductive.

I’ve stopped crying about this for now but I’m still reeling a little.  My job of Mommy - which I’d expected to get easier once the kids started school - has just got harder instead, and I have the expectation now that it will get harder still as my aspie boy grows up.  I can only pray that I will have the strength to get us both through the turbulent times.

 

 

3 Comments »

  1. Hi Hon

    If you haven’t read it yet - I highly recommend a book by Mark Haddon entitled ‘The Curious Incident of the Dog in the Night-time’. The narrator, a 15 year old boy has autism, not Asberger’s I know, but it is excellent at seeing the world from an autistic point of view, particularly dealing with non-verbal clues.

    I’ve checked Amazon.com, it’s there with a great review by a fellow autistic.

    Remember - geniuses change our world.

    Anna xx

    Comment by Anna — September 5, 2006 @ 9:07 am

  2. My boyfriend’s older borther has Asperger’s Syndrome. He’s one of about five percent of people with the disability who also experience some really violent behaviors as well, so where your average person with Autism/Asperger’s would simply misunderstand some humor or something, Thomas tore up his room and beat the shit out of my boyfriend when he was a kid. It’s hard for me to speak about Asperger’s because I know so little about the “true” or more common form is like. I have a hard time distinguishing, largely because it’s such an emotional issue for him and me.

    Regardless, Thomas is very bright and passionate about his interests, as you mentioned many can be. I also reccomend the book Anna suggested, as Thomas’s mom read it and said it was really amazing and insightful.

    I think you now have an incredible insight into your son that you might not have had if he’d never been diagnosed. And while you don’t want to assume you know what your son is thinking because of the stereotypical Asperger’s kid, you may have a far greater appreciation of why he makes some of the choices he does. Your job hasn’t gotten harder now, but the road ahead is a bit more illuminated.

    You can do it, Cherie. ^_^

    Comment by Chubbilypanties — September 6, 2006 @ 5:35 pm

  3. Anna - I’ve coma across a few mentions of that book and I’m looking forward to reading it - as soon as I can find the time! :-p Days have been pretty frenetic lately.

    Chubbily - We have had problems with destructive behavior, and I can only pray that he doesn’t wind up being one of that five percent too. But we are haingin in there for now

    Thanks to both of you ladies for writing your support!

    Comment by cherie — September 7, 2006 @ 3:12 am

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